Behavioural problems in kids with cystic fibrosis

Children with cystic fibrosis (CF) often have problems with sleeping, eating and complying with the physiotherapy they need. These problems may adversely affect health outcomes in children with CF.

Cystic fibrosis is a genetic disorder in which thick secretions build up in the lungs, making it difficult to breathe. Infections also often set in, despite frequent physical therapy to clear the secretions.

To determine the prevalence sleep and behaviour problems in children with CF, researchers surveyed 117 Australian families of children with CF between the ages of 6 months and 5 years. The children's parents and caregivers reported sleeping problems (mild to severe) in 53 per cent of the children and eating problem behavior in 40 per cent, higher rates than normal. Adherence to physiotherapy was a problem in 50 per cent of children.

The researchers also assessed the mental health of the parents and caregivers. Overall, 33 per cent of them reported symptoms indicating depression. Anxiety and stress were reported by 16 per cent and 34 per cent, respectively.  Also, more than a third of them (37 per cent) reported fairly bad or very bad sleep quality.

It may be concluded that problems with sleeping, eating and physiotherapy adherence are common in children with CF. So, an intervention targeting child problem behaviour and parental mental health would be appropriate for CF families.