Where is Hemin injection available to treat porphyria?
Q: This is with regard to my relative who is suffering from a rare disease called porphyria and is in ICU. The doctors advised hemin arginate injection [Normosang] 250/4 doses. Please let me know what is the procedure to get this medicine and how much does it cost?
A:Hemin (human) 25mg/ml sold under the brand name of Normosang is marketed by a company called Orphan Europe in UK and costs British pound sterling 1125 for 4 x 10 ampoules. You can contact the Company in UK at telephone number 00 44 1491 414333 and enquire about availability in India. The drug may be available in very large chemist shops such as Royal chemist in Mumbai or Nath Brothers in New Delhi. The best way to get the medicine quickly is through a friend/relative coming from UK or Europe or Singapore. It can also be imported by courier. The company in UK will issue an invoice and your bank will issue the draft in foreign currency. There is no restriction on import of life-saving medicines.