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Does a child with multicystic dysplastic kidney need a transplant?

Q: We are considering adopting a set of 2 years old twins. One suffers from multicystic dysplastic left kidney. Also the right one does not completely function. The doctors say that at puberty she will probably need a transplant. What are the chances of her living a normal life? Will this sweet little girl live past puberty? What is the mortality rate amongst children with this?

A:Your concerns are very valid and appropriate. If one kidney is multicystic dysplastic and the other is also not functioning normally, the kidney function is likely to deteriorate over time and the child is likely to need a kidney transplant. It is difficult to predict the exact age at which this would occur. Following kidney transplant this child is likely to require life long medications (which suppress immune system). Such children can resume schooling following kidney transplant and lead a near normal life. They, however, do need care and are at a higher risk of infections in view of their immunosuppression medications. In case you require further information you could get in touch with a pediatric nephrologist (specialist of kidney diseases in children).

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